As part of WE&I ArtFest 2019, Malaysian Rare Disorders Society (Persatuan Penyakit Jarang Jumpa Malaysia) is hosting The Art of Life Balancing: Reality vs. Dream, a Youth Sharing Session.
Description: A panel of three youths, each challenged with a health condition, share their stories on how they balance life when pursuing their dreams whilst managing their respective health conditions. Jeslinda, a wheelchair-user Accounts Executive managed to beat the odds within four years ploughing through the struggle of learning how to walk again. Today she is crutch-assisted but a fully functional independent paraplegic. Lydia, a procurement assistant, born with a genetic disorder that causes dry skin which hinders her ability to sweat survived early year stigmatization to successfully complete her tertiary education. Ashley, born with a mild Cerebral Palsy, despite being occupied with college life, continues to pursue new hobbies. These three steel magnolias have one thing in common – a strong desire to pursue happiness despite numerous acute challenges that persistently shroud their dreams. They are passionately positive in benefitting others from their rare journeys through this sharing session. This session will be facilitated by Syafiq Zulkarnain, the founder of WAUlahh Project.
Speakers’ names & details:
• NUR LYDIA AZMI – Business Administrator & Youth Advocate (Ectodermal Dysplasia)
• ASHLEY TAN – Future Clinical Psychologist & Youth Advocate (Cerebral Palsy)
• JESLINDA PAUL – Accounts Executive, Paraplegic – Spinal Cord Injury Survivor
• SYAFIQ ZULKARNAIN – Media Monitor, WAUlahh Project Founder & Lead, Youth Advocate (Ectodermal Dysplasia)
Suitable for: General public, educators, genetic counselors, medical students, health practitioners, parents, healthcare-givers, Health-related NGOs, Youth Groups, Influencers, Health-related Government-Agencies